Vanderbilt Hereditary Colorectal Cancer Registry
The Vanderbilt Hereditary Colorectal Cancer Registry is dedicated to the understanding of hereditary colorectal cancers by gathering information on patients and their family members who have either had colorectal cancer or, because of family history, are at high risk of developing colorectal cancer. The Registry, started in December, 2006, also enrolls those who have or are at increased risk for developing known hereditary colorectal cancer syndromes such as:
- Hereditary Nonpolyposis Colorectal Cancer (HNPCC)
- Familial adenomatous polyposis (FAP)
- Attenuated familial adenomatous polyposis (aFAP)
- Juvenile polyposis (JPS)
- Peutz-Jeghers syndrome (PJS)
- Hereditary mixed polyposis syndrome
Who Should Join the Registry
- You have a personal history of colorectal cancer at age 50 or younger
- Your family history includes close relatives with colorectal cancer
- You have a personal or family history of polyposis (many polyps)
- Your personal family history includes HNPCC related cancers such as endometrial or uterine, renal, ovarian, brain, pancreas, and small intestine.
The registry acts as a resource for patients and their family members by offering cancer screening and surveillance recommendations for high risk individuals.
If you are interested in participating, or would like to find out more about the Registry, please contact Duveen Sturgeon, RN, program coordinator for the Registry: (615) 322-1590 or (800) 340-7752. Email: firstname.lastname@example.org.