Research advocates have a unique and important contribution to make to cancer research, and are increasingly playing an important role in the cancer care setting. By participating in the development and oversight of research, advocates can truly influence the nature of cancer research and the future of patient care.
At Vanderbilt-Ingram Cancer Center (VICC), research advocates participate in the NCI’s Specialized Program of Research Excellence (SPORE), bringing the patient perspective to the table, and helping scientists make the translation of cancer research to cancer patients efficient and effective. Research advocates may be cancer survivors, family members/caregivers, health professionals or community advocates who have an interest in cancer research and are willing to work directly with researchers in a specific SPORE program.
VICC was the first Lung Cancer SPORE program to integrate research advocates into the Lung SPORE team. Since 2002, the lung SPORE research advocates have been actively involved helping to bring the best science to those who are affected by lung cancer by contributing in the following ways:
- Attend SPORE Research conferences and Thoracic Team Meetings
- Serve on SPORE executive committee
- Attend project meetings as part of the interdisciplinary team and participate in research discussions
- Review and provide input on research development, design, clinical trials and informed consents
- Develop patient-oriented resources and tools for SPORE clinical trials
- Raise awareness through presentations to patient and community groups
- Facilitate collaborations with local, regional, and national organizations dedicated to lung cancer
- Participate in on-going advocate educational session
For more information about research advocacy opportunities contact:
- Jane Kennedy, MSSW
Manager, Patient Advocacy
691 Preston Research Building
Nashville, TN, 37232